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Useful organisations

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

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Dancing Eye Syndrome

Aims to give information and telephone support to families of children with Dancing Eye Syndrome, also known as Kinsbourne Syndrome. Activities include: arranging an annual meeting which includes talks by medical experts in this field, arranging a weekend get-together for families in the Trust, and producing a newsletter twice a year. Best time to phone: evenings, after 6.30pm.

Address:

  • 18 Eyre Close
  • Haydon End
  • Swindon
  • SN25 1BF

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